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My brother died of Leukemia. Couldn’t find a donor match even in the family. That was 22 years ago. I think the procedures are better now.  Sending lots of thoughts for success your way. All the love can’t hurt, right? superamit: Many of you have asked, so here’s what’s going on with me. WHAT HAPPENED BEFORE 8/1979: Born. Grew up in CT, built a killer eraser collection, fell in love with computers. Left college to start a company. Fell hard. Fled to India for 3 months. Started 2nd company. Learned to be an adult. Fell in love with NYC. Moved to SF, discovered burritos & some of my fave people on Earth. 9/2011: Got diagnosed with Leukemia! Cried. Went through 3 cycles of chemo. Hurt. Thought hard about what I want out of life. Grew up a second time. TODAY … After over 100 drives organized by friends, family, and strangers, celebrity call-outs, a bazillion reblogs (7000+!), tweets, and Facebook posts, press, fundraising and international drives organized by tireless friends, and a couple painful false starts, I’ve got a 10/10 matched donor! You all literally helped save my life. (And the lives of many others.) WHAT HAPPENS NEXT Tomorrow, I’ll be admitted to Dana Farber in Boston for 4-5 weeks. First I’ll get a second Hickman line to allow direct access to my heart (for meds and for nutrients if I’m not able to eat). Over the next week, the docs blast my body with a stiff chemo cocktail to try and eradicate all traces of cancer cells. In the process, the immune system I was born with, and my body’s ability to make blood, are destroyed. Next Friday, I get my donor’s stem cells by IV. I start on immunosuppressants to prevent my body from rejecting them (I’ll be on them for 12-18 months). For these weeks I’ve no immune system, so I’m severely vulnerable to viruses and bacteria. My hospital room and hallway become my world. Meanwhile, the stem cells make their way to my bone marrow and, with some luck, start producing platelets, red blood cells, and white blood cells. At this point, my blood type changes to the blood type of my donor. And my blood will now have my donor’s DNA, not my own. This is science fiction stuff. I can hardly believe it’s even possible, and there’s lots of chances for things to go wrong. It’s frightening. AFTER THE TRANSPLANT Recovery to a new state of “normal” takes about a year, but there’s a few storm clouds hovering: My immune system is new, like a baby’s. I’m prone to getting sick. Just as with any organ transplant, there’s a chance of rejection. Except in this case, it’s my blood that’s the foreign body, and it touches every organ. They call it graft-vs-host-disease and it can cause health issues and organ complications for the rest of my life. Successful transplant or not, Leukemia can relapse. Stubborn mofo. Overall, 75% of AML transplant patients survive year one, 50% make it through year five. My odds are a little better since I’m young. THE GREAT NEWS I’ve got a long road ahead. But I’ve got a donor & amazing family & friends. A few months ago I didn’t have many options. Today I have a plan. I am alive. I start tomorrow. Wish me luck! Thank you.

My brother died of Leukemia. Couldn’t find a donor match even in the family. That was 22 years ago. I think the procedures are better now.  Sending lots of thoughts for success your way. All the love can’t hurt, right?

superamit:

Many of you have asked, so here’s what’s going on with me.

WHAT HAPPENED BEFORE

  • 8/1979: Born. Grew up in CT, built a killer eraser collection, fell in love with computers.
  • Left college to start a company. Fell hard. Fled to India for 3 months.
  • Started 2nd company. Learned to be an adult. Fell in love with NYC.
  • Moved to SF, discovered burritos & some of my fave people on Earth.
  • 9/2011: Got diagnosed with Leukemia!
  • Cried. Went through 3 cycles of chemo. Hurt. Thought hard about what I want out of life. Grew up a second time.

TODAY

… After over 100 drives organized by friends, family, and strangers, celebrity call-outs, a bazillion reblogs (7000+!), tweets, and Facebook posts, press, fundraising and international drives organized by tireless friends, and a couple painful false starts, I’ve got a 10/10 matched donor!

You all literally helped save my life. (And the lives of many others.)

WHAT HAPPENS NEXT

Tomorrow, I’ll be admitted to Dana Farber in Boston for 4-5 weeks.

First I’ll get a second Hickman line to allow direct access to my heart (for meds and for nutrients if I’m not able to eat). Over the next week, the docs blast my body with a stiff chemo cocktail to try and eradicate all traces of cancer cells. In the process, the immune system I was born with, and my body’s ability to make blood, are destroyed.

Next Friday, I get my donor’s stem cells by IV. I start on immunosuppressants to prevent my body from rejecting them (I’ll be on them for 12-18 months). For these weeks I’ve no immune system, so I’m severely vulnerable to viruses and bacteria. My hospital room and hallway become my world.

Meanwhile, the stem cells make their way to my bone marrow and, with some luck, start producing platelets, red blood cells, and white blood cells. At this point, my blood type changes to the blood type of my donor. And my blood will now have my donor’s DNA, not my own.

This is science fiction stuff. I can hardly believe it’s even possible, and there’s lots of chances for things to go wrong. It’s frightening.

AFTER THE TRANSPLANT

Recovery to a new state of “normal” takes about a year, but there’s a few storm clouds hovering:

  • My immune system is new, like a baby’s. I’m prone to getting sick.
  • Just as with any organ transplant, there’s a chance of rejection. Except in this case, it’s my blood that’s the foreign body, and it touches every organ. They call it graft-vs-host-disease and it can cause health issues and organ complications for the rest of my life.
  • Successful transplant or not, Leukemia can relapse. Stubborn mofo.

Overall, 75% of AML transplant patients survive year one, 50% make it through year five. My odds are a little better since I’m young.

THE GREAT NEWS

I’ve got a long road ahead. But I’ve got a donor & amazing family & friends. A few months ago I didn’t have many options. Today I have a plan.

I am alive. I start tomorrow. Wish me luck!

Thank you.

0 notes &

Antique Jockey on Horse Tin Litho Wind Up Toy Early 20th Century, Marked Germany Circa 1900-1920: Here is a fabulous five inch German tin wind up toy that comes complete with key and is in excellent working order and in fine condition. Great color on the early tin lithography and original harness. Marked underneath. (via Antique Tin Litho Wind Up Jockey On Horse Toy Germany)

Antique Jockey on Horse Tin Litho Wind Up Toy Early 20th Century, Marked Germany Circa 1900-1920: Here is a fabulous five inch German tin wind up toy that comes complete with key and is in excellent working order and in fine condition. Great color on the early tin lithography and original harness. Marked underneath. (via Antique Tin Litho Wind Up Jockey On Horse Toy Germany)

2 notes &

Who is the cutest Scottie Dog? Angus. Drawn and written by Marjorie Flack, this dog and his book has charmed readers for decades. Here is the back cover of the book, Angus And The Cat, taken from a tattered old copy, on the sliding lid of a Vermont-made pine box ready to hold your dog treats, cat nip, loose change or whatever you like. Makes a perfect gift for the dog or cat lover in your life. Custom made to fit right inside a small USPO flat rate ship box. Fill it and send for only about five dollars. available online HERE

Who is the cutest Scottie Dog? Angus. Drawn and written by Marjorie Flack, this dog and his book has charmed readers for decades. Here is the back cover of the book, Angus And The Cat, taken from a tattered old copy, on the sliding lid of a Vermont-made pine box ready to hold your dog treats, cat nip, loose change or whatever you like.

Makes a perfect gift for the dog or cat lover in your life. Custom made to fit right inside a small USPO flat rate ship box. Fill it and send for only about five dollars.

available online HERE

Filed under scottie dog box angus and the cat cat marjorie flack childrens illustrators children's book